Powered by Bravenet Bravenet Blog

Tag Board

This tag board is currently empty.

Please type in the four characters shown in the black box.

Sunday, February 6th 2005

5:08 PM

Sunday Februray 6, 2005

  • Mood:

Good Evening Everyone,

   Tommarow is Mekala's Honor Roll Asembly, so I figured I better work tonight.  I have gotten alot done.  The vote caster has questions relating to ATRT.  If any one ever has suggestions for questions to go on here, please feel free to let me know.  I am trying to get us to be able to add more than one link in the free for all links.  I was only able to add Rhabdoiod Kids.  The fourm is for questions you have for researchers.  Doctors will be encouraged to post answers on this site.  Rest assured if they do not post answers, I will make contact and post responses.  I hope to have a doctor or research center, or maybe both do live chats.  The time will be announced, and you can log on to ask your questions, also if anyone has any suggestions on some topics for this I welcome them.  I have added pictures to the photo album.

   This week I will work on a support page, and getting links to other sites, and information about research at Columbia University.  I will also be trying to get donations for our awarness dinner, the foundation is actully in the red, so if I am going to pull this off I am going to need to seek out some help.  I have had only 2 people RSVP me to say they would help before and at the dinner, so if you were planning to help, but forgot to RSVP as a volunteer please do so ASAP.  We have got some donations of centerpeices for the Dinner, Thank you very much for that, and we have come up with another idea for displaying our stories, so we do not need the science project cardboard.  I also need help with stamps for our invations that are going out this week i had forgot to list that on the web page.

  I hope this site becomes something that all of you will be able to use, and we will be able to collect information that will be able to aid in the research of this cancer.

  I would also like to thank Dave of Rhabdoid Kids, He has not only put a link to this site under Emily's name, but also on the home page.  Dave is Michael's (the first boy on Rhabdoid kids) Grandfather.  He started  Rhabdoid/Angel kids and it has grown to be the main hub of where parents go to communicate to each other.  If it was not for Rhabdoiod Kids this site would not exsist.  I owe alot to Dave.  Thanks a Bunch  Dave!!!!!!

Love to you all and have a blessed week,

Julie Cook

0 Comment(s).

There are no comments to this entry.

Post New Comment

 BraveJournal Member Non-Member
No Smilies More Smilies »
Please type the letters you see